Sunday, 11 June 2006
My Dear Friends,
Computers are a real bummer. This morning I had typed a lengthy entry, tried to post it and POOF! It was gone! (I cried.)
Now I have to remember what I said. Will try to picture it in my mind:
I have been scolded for not posting in a while. Had Abraxane on Monday. Didn’t want to whine about the pain so I just waited it out. Honestly, it wasn’t as bad as previous times (ie: I didn’t have to go home from work.)
Saw my second opinion guy also on Monday. I had tried to schedule the appt so I would have the results of my next bone scan but it didn’t work out. Oh well. I will see my oncologist tomorrow and she will schedule it in the near future.
Dr. 2 asked what my most prominent side effect from this chemo was, as he has only a handful of patients on it. I said nerve pain. He suggested, as I had known, that anti-seizure medications work for nerve pain. Nope, don’t want anything that might mess with my head. If they keep me on the Abraxane, I might reconsider.
Had to ask Dr. 2 about some “what if” scenarios (since I had no test results). He said if the cancer is smaller or stable, they will continue the Abraxane for six months, then take a baseline bone scan.
Baseline! That implies there will be may more after that! That implies I might have years left! This never occurred to me.
Told him about my clear lung xray last month. He said he does not think it will go to my lungs. This was news to me!
He also mentioned a patient in my situation doing very well. Her pain stopped after starting Abraxane. My doc had given me the impression that we’d try a bunch of drugs but none would work. She never said this might work.
I had prayed for a message of hope. Throw me something, Lord. I felt a little better after talking to Dr. 2.
Now I feel like it didn’t work because I didn’t believe in it. My doc should’ve told me it could work.
I’m also worried because the upper left arm, where we know there’s cancer, hurts a few times a day. Now the right has started to hurt. I am NOT looking forward to this bone scan!
We went to the Komen Race for the Cure on Saturday. I got choked up a couple times seeing how many people this disease has affected. Survivors get to wear bright pink shirts. There seemed to be fewer pink shirts than last year. I hope it’s because the Relay for Life was also going on that day in another town.
I will try to update more often. Please pray for a good upcoming test result. Thanks!
Love,
Jeanette
Computers are a real bummer. This morning I had typed a lengthy entry, tried to post it and POOF! It was gone! (I cried.)
Now I have to remember what I said. Will try to picture it in my mind:
I have been scolded for not posting in a while. Had Abraxane on Monday. Didn’t want to whine about the pain so I just waited it out. Honestly, it wasn’t as bad as previous times (ie: I didn’t have to go home from work.)
Saw my second opinion guy also on Monday. I had tried to schedule the appt so I would have the results of my next bone scan but it didn’t work out. Oh well. I will see my oncologist tomorrow and she will schedule it in the near future.
Dr. 2 asked what my most prominent side effect from this chemo was, as he has only a handful of patients on it. I said nerve pain. He suggested, as I had known, that anti-seizure medications work for nerve pain. Nope, don’t want anything that might mess with my head. If they keep me on the Abraxane, I might reconsider.
Had to ask Dr. 2 about some “what if” scenarios (since I had no test results). He said if the cancer is smaller or stable, they will continue the Abraxane for six months, then take a baseline bone scan.
Baseline! That implies there will be may more after that! That implies I might have years left! This never occurred to me.
Told him about my clear lung xray last month. He said he does not think it will go to my lungs. This was news to me!
He also mentioned a patient in my situation doing very well. Her pain stopped after starting Abraxane. My doc had given me the impression that we’d try a bunch of drugs but none would work. She never said this might work.
I had prayed for a message of hope. Throw me something, Lord. I felt a little better after talking to Dr. 2.
Now I feel like it didn’t work because I didn’t believe in it. My doc should’ve told me it could work.
I’m also worried because the upper left arm, where we know there’s cancer, hurts a few times a day. Now the right has started to hurt. I am NOT looking forward to this bone scan!
We went to the Komen Race for the Cure on Saturday. I got choked up a couple times seeing how many people this disease has affected. Survivors get to wear bright pink shirts. There seemed to be fewer pink shirts than last year. I hope it’s because the Relay for Life was also going on that day in another town.
I will try to update more often. Please pray for a good upcoming test result. Thanks!
Love,
Jeanette
posted by Mark Kappe @ 6:33 AM
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